PfOl11iSe$ Power of Attorney is a promise that your wishes will be respected and your partner will have a say. But that’s not always enough. A cautionary tale. A - BY CYNTHIA Porrs N about end—of—life issues, but we all have to do it eventually With New Year’s Eve around the corner, many. familes resolve to get their household papers in order. You may already have every- thing covered, with power of V attorney [POA] forms and health proxies on file for you and your partner. But when push comes to obody wants to think ‘ shove, how much do these papers really count? ‘B In New York, not much, according to Terry Checksfield. She’d been with her partner, Barbara Blake, for 27 years. N “She was my wife; I talked to her about everything, she talked to me about everything.” But when Barbara suffered a devas- ’ tating stroke, she wasn’t talking to anyone — and the medical and ’ legal authorities weren’t talking to Terry. “On May 23rd, Barb was with Brenda, her niece. They were going to a party. That’s when Barb had her stroke.” There’s still anger in Terry’s V.oice,more than a year later. I 3 inside this is 3 contents p. 2. Get your ‘Orafltuick AIDS test resuts at vr CARES in 20 minutes, ifyouve got $40 for the peace of mind. “She had two cell phones, they passed two fire stations, and instead Brenda took her to her cousin’s house. Got her out of , the car, up the stairs, and only - then called the ambulance.” Barb was brought to University Hospital in Syracuse.’ “That’s when the trouble really started.” Terry explained. “I’d shown up with a bag of medicine — Barb suffered from diabetes and back problems .’T Consent forms for Barb’s care had been — signed by Barb’s family mem- . Barhara 1.‘ Blake A July 31. 2964 ‘Barbara J. Btake. 5?.- of Phoenix. aw. died Satur¢laV- - Survivors: be!’ cNi6¥8~'1e 90”‘ aid Ii, and Rhonda; "he? 335 grandchildren. services prwate. ‘ contributions in Barbara 5 mgmary may be made to the American Cancer Sucre‘)? Trust: Fuawal Home »€.¢t!%!l%‘5R“"* bers, rather than by Terry. “At that point, my job was to get the best care for Barbara. I wasn’t thinking about who signed what when.” In New York, consent for care Y World AIDS Day Section :pp..8—9. Notes from 35 years of activistm fin .south- ern Vermont, and a new gen- eration living with the disease and hope reaches out to their peers. .’“J their lives. forms need to be signed by a spouse, relative, or legal desi.gnee. Barb had in fact signed a power of attorney and health ' care proxy form earlier that year, desgiinating Terry to make deci- sions for her. ‘ - Despite these existing docu- ments, Terry alleges that Barb’s THE MOUNTAINS I Terry Checksfleld and Barbara Blake at a happy moment In “The family services worker did apologize to me after,-” Terry said. “She didn’t know I existed. How would she know? The fam- ily certainly wasn’tgoing to tell her. ' 99 attorney and health care proxy, Terry is not mentioned in Barb’s obituary. Custody of Barb’s body went to her blood relations, who buried her on private property. Terry is not allowed to visit Barb’s grave. family took over the decision- making process. She cites an , after—care planning meeting with the hospital ’s family services ‘ division that went on without her knowledge or consent. p.12- Arum poem for the hott- dayst :cly'kes., dreams, a quest, ‘Champ, -gay guys, romance, but mocolate, an attempt to rhyme -banal with flannel. what more could you want? they had Terry sign a new set of paperwork and turned to her for treatment decisions. A represen- tative from the hospital would A not discussthis case, citing con- ‘ fidentiality issues, but did say '7 Shock ‘hoops of Cool p.20. Clark Sheldon reveals Jennifer ‘Blowdryefs secrets of the ttrendty (aka “.punk"), ponders the meaning of . After the University [Hospital received copies of the power of ‘V; ‘A that procedure dictated‘ honoring the appropriate legal paperwork. “That meant that everything Rhonda [Barb’s daughter] had signed was no good anymore,” Terry ‘said. “Butthese are her kids, I wanted them to be involved.” The paperwork in . question included a do-not— ft recessitate order, literally a life- or—death decision. _ “That’s when things got even . worse,” Terry said. “They. accused me of forging the [power of attorney and health- care proxy] papers, of manufac- turing the signature.” When asked about the cir- cumstances surrounding Barb’s death, Rhonda Blake replied, “I’m surprised Terry wants to talk about this story. It doesn’t paint her in a very good light.” She paused. “I’m not sure how much I can really say, as there is ‘some litigation going on.” Rhonda Blake said that she’d be willing to talk more about the story after consulting with her family members, but subsequent calls to the Blake home went unanswered. Messages left with other family members elicited no response. ' According to Terry, Barb’s . family members continued to ' sign consent forms for_Barb’s. treatment. One of these consents allowed a biopsy of a mass in Barb’s left lung. On top of i < everything else, she had cancer. As Barb’s condition deterio- rated, plans needed to be made, for her care. Even-though Terry had the power of attorney and health care proxy in place, a decision was made by hospital staff to include all of Barb’s family members in the discharge planning. . continued on p. 7 News 1-3 7 Editorial 4 ‘I’ ‘Letters, 1\‘fiflit:t's End .5 V 5, 8-13 ‘I’ Views 34-18 V 19-.2‘-I “ax/ant gardej and covets your 7 23"c5* 2445 discarded drag. ‘V 26-71Ctassie.-s‘23 '7 29-31