Breaking the Silence BY AUGUSTUS NASMITH, JR. I respect the silence many war veterans keep around memories of the unspeakable. I too am a survivor of world- wide devastation. I keep pained silence when I think of loved ones gone. But affliction con- tinues in horrendous magni- tude; words, however inade- quate, must be found. The “unspeakable” rages for an estimated 34 million cur- rently infected by HIV. It rages as action could prevent further infection and make health care more equitable. In this global war, silence is death’s ally. ‘Break the Silence’ was the cry of 12,500 leaders of world efforts to confront HIV/AIDS in Durban, South Africa, in July for the XIII lntemational AIDS Conference. AIDS’ spread highlights gaps between rich and poor, educated and uneducated, democracy and tyranny. The late Jonathan Mann pointed out that the already marginalized are the most HIV-susceptible. In the US, with a constant annual new infection rate near 44,000, media and public pre- fer to think of AIDS as “over.” Deep down, we want treat- ment advances to mean the danger is past. But with .6 percent adult infection, fear of AIDS and wishful thinking are dangerous blind spots in our rich coun- try’s struggle. The UN Programme on HIV/AIDS ‘reports more and more poor countries with 5 to 35 percent adult infection. In most of the developing world, the epidem- ic is worse than predicted. We must guard against paralysis, educate and prevent here in the US, and admit there is much to be done worldwide. Since the first international AIDS conference in 1985, authorities warned of HIV’s devastating spread without thorough national prevention programs. The years have been hard teachers about failed lead- ers and societal impediments. Disaster elsewhere under- scores the importance of efforts at home. Epidemic anywhere threatens the whole modern world. One that could wipe out social and political structure and decades of the developing world’s economic gains threat- ens regional and global stabili- ty and hope of mutually benefi- cial world trade. I cringe at economic and security arguments, but they speak to those_ to whom human tragedy does not. Still, if we feel so far removed from those facing the worst impacts of AIDS that we cannot care, we reveal our attitudes to a world in which we proclaim our- selves the only superpower. We also mark our society. Caring for and sharing with‘ others are part of Vermont social fabric. Most feel stigma from irrational fear are over, yet old ignorant slander about HIV became anti-civil union rationale! Hypocrisy-about sex and hindering effective sex education and health measures mean infection. Enlightened education policy and preven- tion promotion continue a low infection rate, are better for public health, and spare service and government resources. Durban was the first south- ern hemisphere international AIDS conference. It meant increased involvement of Africans and attention to their plight. Sadly, President Thabo Mbeki did not energize with his opening address. With 4.2 million infected, South Africa’s 20 percent adult infection rate is growing. One in four women between 20 and 29 is infected, more than young men. Young women are often forced to partner highly infect- ed populations of older men who refuse protection. Women discussed the need to counter male cultures’ failure to con- front HIV. Precious Sibesi shared a teenage view that “cute young guys” could not be infected. Without education, Vermont teens could make such assumptions. Kefiloe Ramela spoke so softly you could feel her bro- ken heart. Her mother had died; her brother was dying. HIV showed that “when days are dark, friends are few.” “So much is hard for me,” she said, .\-/.v broken English conveying her life’s message. These voices have clarity from abandonment and isola- tion. Stories show fear pro- motes ostracism, stigma, and denial, blocking prevention. We have improved, but it still happens here in marginalized, uneducated populations. Do Vermonters who block thor- ough health education realize they put children at risk? Socio-economic, and human rights inequities dominated discussion in Durban, magnify- ing US concerns. Participants expressed frustration that denying HIV/AIDS’ realities November 2000 | Out in the Mountains i9 = opinion = health crisis, fear, denial, and cultural and moralistic barriers to safety will have the same consequences everywhere. The Caribbean already mim- ics Africa. Except for the wealthy, there are no treat- ments, hospitals, or care ‘for the infected. Women and chil- dren are abandoned by death or flight. There is no work for women supporting families. India’s 3 million infected are .7 percent of its huge popula- tion; HIV is growing where it was ignored it until recently. A slide showed results: a shabby straw hut, miles from any dwelling, to which a village The reality: in most of the developing world, the epidemic is worse than predicted. included denying equitable health care. “Available treatments are denied to those who need them,” said South Africa High Court Justice Edwin Cameron, “for the sake of aggregating corporate wealth for sharehold- ers who, by African standards, are already unimaginably afflu- ent. No more than Germans in the Nazi era,‘ nor more than white South Africans during apartheid, can we at this Conference say we bear no responsibility for 30 million people in resource-poor coun- tries who face death from AIDS unless medical care and treatment is made accessible.” Many decried prices that deny treatment to 95 percent of infected people. Think of Vermont demands for fair drug costs; are we not in solidarity with those with but hundreds of dollars’ annual income? To spread the alarm about Africa is to tell the world what awaits. Without national lead- ership to deal with public \ ~. Whatever you take along for pleasure, consider this: We may feel safe in Vermont, but we’re not immune to AIDS and other sexually transmitted diseases. Don’t take a chance... take a condom exiled an AIDS casualty’s widow. Such fear, denial and lack of compassion guarantee the viral march: HIV lives and spreads back in the village. Adult infection tops one per- cent in Cambodia, Myanmar, and Thailand. In China, Indonesia, Malaysia and Nepal, shared needles in rising drug use transmit HIV. In the former Soviet Union, with col- lapsed health and social struc- tures, prostitution, and related activities also spread it. Without the difficult US awak- ening and intelligent Vermont public health policy, we, too, would see such explosion. The Durban conference joined champions to “do some- thing,” even those whose poverty and history might fos- ter fatalism. Rather than accept death sentences of ignorance and fear, they tell liberating truth. Rather than take the con- sequences of individual, soci- etal, and governmental irre- sponsibility, they define and demand responsibility. The «fix \ $2 Nxxx ~.. . conference was a mass demon- stration of rich and poor demanding that humankind reach its potential. Since the 19805, American experts have been in the fore- front, defining the disease, -try- ing to stop its spread, develop- ing treatment, seeking cures. We have seen the best of our capacity to research, educate, and lead, learned humility through limited progress, and admitted health care inequities. Might the world HIV/AIDS crisis recall us to international cooperation? To protect all from HIV (or any disease) is to protect ourselves. To work for the planet’s health to work for our own. To confront AIDS is to reset goals of development and democratic societal evolu- tion behind the UN Charter and ideals to ensure universal human rights. US leadership in commitment to a better world can still show others what is right. But we must commit to what is right ourselves, includ- ing our UN responsibilities and assistance programs abroad. Nelson Mandela inspired with his closing address at Durban. “Others will not save us if we do not primarily com- mit ourselves,” he said. “Partnership with the interna- tional community is vital... in this inter-dependent and glob- alised world, we have indeed again -become the. keepers of our brother and sister. That cannot bemore graphically the case than in the common fight against HIV/AIDS.” Mandela reminded us how exhilarating it is to commit ourselves, how immune enhancing to identify with what is right and good. How beneficial to break the silence! Augustus Nasmith has lived with HIV since 1983. He lives in Rutland.V Vermont AIDS Hotline 1.800.882.AIDS TTY 1.800.319.3141